> Patient-advocacy groups have been around for decades, but it’s extremely unusual for one or two families to single-handedly direct an international research agenda. It helps that both the Mights and the Wilseys have family money. (Matt Might’s father is the president and C.E.O. of Cable One, the cable-television division of the former Washington Post Company.)
It's a really sad fact that economic inequality has a particularly dire effect on limiting access to quality healthcare and specialists for patients with rare diseases, no matter the severity.
The diagnosis difficulties the Mights went through with their son are made much worse for parents who can't pay, even for much more common rare diseases.
Hopefully someday our civilization can advance to the point where economic means matter much less than they do now for healthcare, where quality of life and opportunity to thrive is respected equally for every human, regardless of family money, or who gets the right to publish.
It's a really sad fact that economic inequality has a particularly dire effect on limiting access to quality healthcare and specialists for patients with rare diseases, no matter the severity.
The diagnosis difficulties the Mights went through with their son are made much worse for parents who can't pay, even for much more common rare diseases.
Hopefully someday our civilization can advance to the point where economic means matter much less than they do now for healthcare, where quality of life and opportunity to thrive is respected equally for every human, regardless of family money, or who gets the right to publish.