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You appear to take an extreme stance.

Try a different argument: If your parents knew there was a high probability that their child would inherit genes making CF an aspect of their lives, would they try to change that even at potential risk.

As a parent myself there is very little I wouldn't do for my child.

I can't imagine the pain CF has caused you and the sacrifices you've had to make. If I were your parent, my desire to not put you through pain would be invariably high.

Isn't that one element of exploration in foundations looking for a cure?

It seems transparency, the longer term impacts, the tradeoffs we will face that we just don't know. There is a cold logic that accompanies that line of thinking. I am not saying one way or another, I just feel it is worth echoing from a purely logical standpoint.



No, I am not taking an extreme position.

Saying that trying to make designer babies comes with potential downside that is potentially horrifying is not an extreme position. It also isn't the same as arguing that people with known genetic defects should be denied the opportunity to try to have children who lack that defect.

Isn't that one element of exploration in foundations looking for a cure?

I've grown vastly healthier while the entire world calls me crazy and accuses me of making that up. I've done so largely via diet and lifestyle.

Based on that, my view is that the obsession with Oo, Shiny! tech solutions expected to create some slam-dunk solution actually hinders real progress. It causes the world to largely overlook more prosaic solutions with more immediate pay-off but less glamor.




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